Fear of lower participation due to data-sharing clauses,
particularly with certain data types (e.g., video data) Challenge for data sharing practices
Would participants actually agree less?
Does participants’ understanding align with that of the researchers?
Design of consent
More general challenge: Evidence that participants often don’t read/understand consent forms
Evidence so far:
Comprehension varies with reading level, interactivity
Dialogue about data sharing increases consent may be challenging with larger sample size option for automated response?
Research Questions
Do participants read and understand informed consent forms in the same way researchers intend?
Does the information on sharing data (containing vs. not containing a section on data being shared) influence the participants’ willingness to participate? (for different data types?)
Does the option to clarify concerns about the informed consent make a difference in the willingness to participate?
Study 1
Procedure: Presenting the actual consent, then if participants agree…
Design: 2x2 between-subjects design with randomized conditions
Factors: Consent with different
reading level (standard vs. easy-to-read)
interactivity (display-only vs. quiz-format).
Measures:
Dwell time
Self-reported reading engagement
Understanding (e.g., via multiple-choice)
Study 1
Procedure: Presenting the actual consent, then if participants agree…
Design: 2x2 between-subjects design with randomized conditions
Factors: Consent with different
reading level (standard vs. easy-to-read)
interactivity (display-only vs. quiz-format).
Measures:
Dwell time
Self-reported reading engagement
Understanding (e.g., via multiple-choice)
Controls
Individual concept/knowledge of research data handling
Check dwell time on the consent form of past studies
Ideas to code
Which population?
Participants incentivized? How?
Topic of study?
Do we have consent to do this…?
Study 2
Procedure: Description of study
Design: 2x3x… (within?-)between-subjects design
Factors:
Data-sharing section (included vs. not included)
data collection format (video recording vs. interview vs. survey)
topic of study (sensitive vs. “not so” sensitive)
…?
Measure: Willingness to participate (6-point Likert scale)
Study 3
Design: Within-subject design with consent for a fictitious video study
Procedure:
Initial Response: Participants indicate willingness to participate (6-point Likert scale)
“No” Response: Provide primary reason (open-ended)
“Yes” Response: Describe a scenario for not signing consent
Additional Measures: Perceptions of being well-informed and trust in research
Feedback: Written feedback from an LLM addressing participant concerns
Participants asked again about willingness to participate (6-point Likert scale), feeling informed, and trust