Research Questions



  1. Do participants read and understand informed consent forms in the same way researchers intend?

  2. Does the information on sharing data (containing vs. not containing a section on data being shared) influence the participants’ willingness to participate? (for different data types?)
  1. Does the option to clarify concerns about the informed consent make a difference in the willingness to participate?

Study 1

  • Procedure: Presenting the actual consent, then if participants agree…
  • Design: 2x2 between-subjects design with randomized conditions
  • Factors: Consent with different
    • reading level (standard vs. easy-to-read)
    • interactivity (display-only vs. quiz-format).
  • Measures:
    • Dwell time
    • Self-reported reading engagement
    • Understanding (e.g., via multiple-choice)

Study 1

  • Procedure: Presenting the actual consent, then if participants agree…
  • Design: 2x2 between-subjects design with randomized conditions
  • Factors: Consent with different
    • reading level (standard vs. easy-to-read)
    • interactivity (display-only vs. quiz-format).
  • Measures:
    • Dwell time
    • Self-reported reading engagement
    • Understanding (e.g., via multiple-choice)
  • Controls
    • Individual concept/knowledge of research data handling
  • Check dwell time on the consent form of past studies
  • Ideas to code
    • Which population?
    • Participants incentivized? How?
    • Topic of study?

Do we have consent to do this…?

Study 2

  • Procedure: Description of study
  • Design: 2x3x… (within?-)between-subjects design
  • Factors:
    • Data-sharing section (included vs. not included)
    • data collection format (video recording vs. interview vs. survey)
    • topic of study (sensitive vs. “not so” sensitive)
    • …?
  • Measure: Willingness to participate (6-point Likert scale)

Study 3

  • Design: Within-subject design with consent for a fictitious video study
  • Procedure:
    • Initial Response: Participants indicate willingness to participate (6-point Likert scale)
    • “No” Response: Provide primary reason (open-ended)
    • “Yes” Response: Describe a scenario for not signing consent
    • Additional Measures: Perceptions of being well-informed and trust in research
    • Feedback: Written feedback from an LLM addressing participant concerns
    • Participants asked again about willingness to participate (6-point Likert scale), feeling informed, and trust

Thank you



Jürgen Schneider

References

Credit

Title page: Aziz Acharki on Unsplash

Icons by Font Awesome CC BY 4.0

Slides: link pending